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The Kidney Sellers: A Journey of Discovery in Iran, by Sigrid Fry-Revere
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Rarely does an adventure story carry such social significance as in this groundbreaking ethnographic research book. Dr. Fry-Revere's exploration of the medical ethics of compensating organ donors takes us deep inside Iranian culture to provide insight and understanding into how Iran has solved its kidney shortage. The Kidney Sellers: A Journey of Discovery in Iran addresses the question: How it is possible that in Iran there is a waiting list to be a donor, while in the United States hundreds of thousands of people have died� for lack of a kidney?
Dr. Fry-Revere is the first Westerner ever to witness firsthand Iran's organ procurement system. She shares what she discovered in this fascinating book: part diary of living in a dangerous country, part ethnographic essay, and part tale of people working together to overcome death and financial ruin. The Kidney Sellers is a shocking, thought-provoking true story.
To view the promotional trailer for this book, please visit the author's Amazon web page by clicking her name above.
- Sales Rank: #1028992 in Books
- Brand: Fry-revere, Sigrid
- Published on: 2014-03-01
- Original language: English
- Dimensions: 9.50" h x 6.25" w x 1.00" l,
- Binding: Hardcover
- 254 pages
Review
''Sigrid Fry-Revere has given us an amazing, courageous, provocative, even dangerous look at the complex and generally successful system of selling/donation that has solved the kidney supply problem in Iran. Eloquently, humorously written, it is one of my best reads in years. The book will be fascinating to anyone who loves a good travel adventure story, but essential for anyone interested in overcoming the organ transplant problem that costs thousands of lives each year.'' --Robert Veatch, Ph.D., Professor of Medical Ethics at the Kennedy Institute of Ethics and Fellow of the Hastings Center (In 1983 Dr. Veatch testified before Congress in favor of outlawing kidney sales.)
''The Kidney Sellers is exciting, well written, and insightful. This book is going to revolutionize the way we think about living kidney donation.'' --Harvey Mysel, Founder, Living Kidney Donors Network
''The Kidney Sellers offers an invaluable and hopeful contribution to a long-standing controversy. This book is a must read for anyone who wants to take improving donation rates seriously.'' --Jim Gleason, UNOS board member, TRIO (Transplant Recipients International Organization) president
''The Kidney Sellers is exciting, well written, and insightful. This book is going to revolutionize the way we think about living kidney donation.'' --Harvey Mysel, Founder, Living Kidney Donors Network
''The Kidney Sellers offers an invaluable and hopeful contribution to a long-standing controversy. This book is a must read for anyone who wants to take improving donation rates seriously.'' --Jim Gleason, UNOS board member, TRIO (Transplant Recipients International Organization) president
From the Author
The Kidney Sellers has helped launch the living organ donors rights movement in the United States.� Please see Stop Organ Trafficking Now! at StopOTN.org and the American Living Organ Donor Fund HelpLivingOrganDonorsSaveLives.org for more information.
Also see my TEDMED talk at� youtube.com/watch?v=VS9wkGjEdhQ
About the Author
Sigrid Fry-Revere, J.D., Ph.D., is the founder and president of the Center for Ethical Solutions, a non-partisan, non-profit, 501(c)(3) public charity dedicated to educating the public on issues in patient care ethics. Sigrid is also the medical ethics consultant to the Washington D.C. Regional Transplant Community's Organ and Tissue Advisory Committee. She has taught bioethics and law at the University of Virginia and George Mason University; been a consultant to hospitals, hospices, and home health agencies; and practiced health and FDA law. Sigrid's more than a hundred articles have appeared in newspapers, journals, and trade publications such as The New York Times, The Los Angeles Times, The Wall Street Journal, The Cambridge Quarterly of Healthcare Ethics, The Journal of Clinical Ethics, and Pediatric Nursing. She is the author of one book (The Accountability of Bioethics Committees and Consultants) and has edited another (Ethics & Answers in Home Health Care). Sigrid holds a Ph.D. in philosophy and a law degree, both from Georgetown University. This is her first non-fiction adventure book. She lives with her husband Bob Corn-Revere on a farm in Northern Virginia where they raised their four children.
Most helpful customer reviews
1 of 1 people found the following review helpful.
One of the most eye opening books I have read.
By Ginger Dawn Harman
The Kidney Sellers
A Journey of Discovery in Iran
By Sigrid Fry-Revere
Dr. Fry-Revere’s brand-new ethnographic research book, The Kidney Sellers: A Journey of Discovery in Iran addresses exploration of the medical ethics of compensating organ donors and that takes the reader deep inside Iranian culture, providing insight into and understanding of how Iran has solved its kidney shortage crisis. This powerfully argued new research book makes clear that the wider the gap between ethics and medical technology becomes, the harder it is for a government and ethnopsychologist to bridge it: put simply, what is good for one side is bad for the other. It is also clear that the need for serious action has never been greater for those who suffer from kidney disease. An estimated 26 million adults, or one in nine Americans, have chronic kidney disease, and another 20 million are estimated as being at risk of developing the disease. Dr. Fry-Revere’s years of research have led her to investigate, how it is possible that in Iran there is a waiting list to be a donor, while in the United States hundreds of thousands of people have died� for lack of a kidney? Putting her own personal safety at risk, without knowledge or consent from the Iranian government, the author traveled the country and interviewed kidney donors, recipients, Iranian transplant staff, medical transplant physicians, and Anjonman staff, who provided much information on the historical to current practices in Iran. With nine binders of just video transcripts alone, Dr. Fry-Revere and Dr. Bahar Bastani have documented the raw and honest data affording possibilities for answers to the American kidney crisis.
When I was first approached through my website to review this non-fiction, I thought why choose me? I am not a medical or law expert. I am now thankful for the opportunity because this book has taught me a great deal. In today’s society, many have become accustomed to, “if it doesn’t affect me then it is not my problem.” It is our problem. With the alarming data of black market of kidney sellers who abduct, and exploit, everyone has either an acceptability to respond or to turn one’s head. Unfortunately, it is not until something becomes out of control that policies are rushed and passed into law. This is not only dangerous but creates a desperate quick fix. The Iranian government has a legal system that is working and which could be used as a model for the kidney organ crisis that we face in America. At heart, this is a book about finding solutions and maintaining ethics.
Dr. Fry-Revere’s, The Kidney Sellers: A Journey of Discovery in Iran, is a thought provoking, well researched, and educates the reader to the importance of the kidney shortage crisis. The author shares in it personal stories of her childhood abroad and her time at the University of Geneva. As a young woman, she was given a foundation of global ethics by wide-ranging discussions with her parents, and her own experiences with street urchins in Naples, and such things as the suffering of lepers, and death met in the form of a dead body discovered in Rio de Janerio. This personal honesty sets a minor theme to the book as to what is more important. A person’s life and well-being and what is the monetary value of a life. Many of the stories are moving enough to raise tears, “Steve’s Story” provides psychological insight to waiting for a kidney in America. In contrast, a mother in Iran, sells her kidney in order to pay for her daughter to attend university, and a young man sells his kidney to pay his Diyya. In addition, the book provides several examples of the negative stereotypes and labels one receives in America and Iran when donating/selling a kidney. It was also interesting to read the difference Dr. Fry-Revere and Dr. Bahar Bastani had in cities such as Kermanshah, Shiraz, Isfahan, and Tehran.
The kidney shortage can be solved. This has been proven in Iran. Some may find the Iranian approach disagreeable. Moreover, the Iranian legalized compensation program for kidney donation is not without flaws. The United States does have a kidney donation system through altruistic means. Yet, most that receive a kidney are well-to-do, leisure class, and upper middle class. It is important to note that most expenses for the donor are not covered by medical insurance. Meanwhile, the poor, average working class, and unemployed have to watch their family and friends die on dialysis or wait for a second class cadaver kidney that statistically has a very low chance of coming.
The price of this book is appropriate and the front cover is intriguing. It has a simple eye-catching design that evokes a powerful message. The choice of the Iranian flag and red lettering conveys energy, passion and action. The reading audience or level of experience that is needed to use the information in this book would be ages 25 and older. Physicians, political law makers, researchers, medical students, and those looking to understand the kidney shortage issues will benefit most from this work. I have not been able to locate any existing book that covers this type of research on the market. The Kidney Sellers: A Journey of Discovery in Iran does not use stilted language; it is very readable as well as technically accurate. The author takes great care to explain the religious and cultural difference in Iran to help the reader understand the background.
Sigrid Fry-Revere, J.D., Ph.D., is the founder and president of the Center for Ethical Solutions, a non-partisan, non-profit, public charity dedicated to educating the public on issues in patient care ethics. Dr. Revere has more than a hundred articles published in newspapers, journals, and trade publications such as The New York Times, The Los Angeles Times, The Wall Street Journal, The Cambridge Quarterly of Healthcare Ethics, The Journal of Clinical Ethics, and Pediatric Nursing. Sigrid is also the medical ethics consultant to the Washington D.C. Regional Transplant Community's Organ and Tissue Advisory Committee. I highly recommend The Kidney Sellers: A Journey of Discovery in Iran by Sigrid Fry-Revere.
1 of 1 people found the following review helpful.
Opened my mind...and my heart.
By eldonna edwards
As an altruistic (non-related) kidney donor I just assumed if enough people had the information about the tragic shortage of organs and the resulting suffering, we could solve the problem. Unfortunately, the issue is not a black and white one. After reading Sigrid's thorough examination of the ethical, social and economic aspects of Iran's kidney donor system, I find myself wondering if we might be capable of improving current policy, thereby saving many, many lives. If covering the donor's costs (including travel, time spent for testing, after-care and lost wages) increases organ donation and if every donor is thoroughly vetted to make sure they are healthy and well-informed about the risks, then maybe we could solve the organ shortage. Who are we to let others die because they didn't receive a kidney in time as a result of potential donors inability due to financial hardship? It's a touchy subject and I think we need more data, but this book does an excellent job of highlighting a broken system. In addition to the courageous risks Ms. Fry-Revere took in order to collect interviews from donors, recipients and medical staff, she writes beautifully about the landscape of a country most of us will never see. Thank you Sigrid for bringing much-needed attention to the tragic shortage of organs and offering possible solutions that might give hope to donors and recipients alike.
3 of 4 people found the following review helpful.
Unnecessary death and life destroying event
By A. G. Moye
I was given a copy by the author to give my honest review. I found the story engaging and nicely written.This story is about Sigrid Fry-Revere trying to evaluate whether or not Iran, of all places, has solved their kidney shortage. The argument on whether the USA and the rest of the world should allow people to sell their kidney (Having two of them in good working order) to anyone that needs them, in return for compensation for the kidney. Sigrid, to achieve this, goes undercover as an Iranian woman. She does this without the knowledge of Iranian authorities. She collects first hand stories from the Sellers and recipients regarding kidney sales, not government propaganda provided to the public.
Sigrid's venture into Iran forces her to follow the rules of a female Muslim. Being opinionated, it was hard for her to conform.
The story, along with her thoughts as she collects data, are very compelling and forthright. Honest in her assessments, giving the good and bad of the system in Iran. Near the end of the book she gives her opinion to the US government. She stated they needed a match for waiting kidney transplant recipients to shorten the time spent on dialysis. Did you know that dialysis only removes 10% of the toxins from your body? I didn't know that!
In the overall writing of this story, it has good pacing with humor inserted in places. The characters are real people. She tries to explain and understand why a person would sell a kidney to someone, having major surgery in the process. She has to change the names of the Iranian subjects to protect them. In a few places, she bogs down in the story but then picks it up, allowing the reader to realize the Iranian people are just like people anywhere in the world, trying to make a life for themselves by improving their financial position in life.
She gives you facts and places to research the information yourself. She calls upon all, to change our laws, making it easier to get kidney transplants. Cutting down on the time a person spends on dialysis. The success rate will be higher by allowing people to sell one of their kidneys.
I especially like the part of the conversations with her friend Larry about the hope of a new kidney, he was so optimistic, believing a transplant would happen soon after starting dialysis. This optimistic attitude soon turned from positive to passive, finding life wasn't worth living on dialysis. Then it became clear he was not going to be given a transplant. No kidneys were available because he was too far down the list. Living on dialysis turned into no life at all, he made the decision to stop the treatments and stop living. His passing, to me, brought home the need for change in our laws. After reading this story and learning how renal failure can destroy and otherwise productive life very quickly, we should allow the purchasing of a kidney, legally.
My own personal experience was with a friend that went from a robust looking man, went to a bare skeleton in a short time. He was on dialysis but he was lucky, my friend Danny had a younger brother whom donated one of his kidneys. Months afterwards, Danny started looking and feeling better, although it has taken him a long time to recover and lose his gray pallor. He has since returned to work as an electrical linemen. After reading this book, he was one of the lucky ones. You should pick up your copy of this book and it will change your outlook on a lot of things. Including the way you view Iranian people.
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